Teenagers to Adults

Outside Resources

Healthcare Checklist for Children and Adolescents with Down Syndrome (AAP)
Adults with Down Syndrome Medical Care Guidelines for Families (GLOBAL)
2022 American Academy of Pediatrics Health Supervision for Children and Adolescents with Down Syndrome (AAP)
Healthcare Guidelines Record Sheet in English, courtesy of Anna and John J. Sie Center for Down Syndrome (NDSC)
Tweens and Teens (NDSC)
Aging and Down Syndrome. A Health and Well-being Guidebook (NDSS)
Self-Advocacy at Medical Appointments (NDSS)
Practicing Inclusive Mental Healthcare of Individuals with Down Syndrome (NDSS)
Mental Wellness in Adults with Down Syndrome (Brian Chicoine, MD & Dennis McGuire, PhD)
Alzheimer’s Disease in People with Down Syndrome (NIA)
Fact Sheet Alzheimer’s Disease in People with Down Syndrome (NIA)
Alzheimer’s Disease in People with Down Syndrome: What We Know and What We Can Do About it (NDSS Webinar with Dr. Michael Rafii, MD, PhD
Family & Caregivers Support (NTG)
Inclusive Mental Healthcare for Individuals with Down Syndrome (NDSS with Ruth Brown, PhD, LPC and Morgan Stohlman, MA, LPCC, CASDCS)
321go! (NDSS)
Locate a Down Syndrome Parent Organization By State (NDSC)
International Down Syndrome Organizations & Clinics (GLOBAL)

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