More Resources : Newborn to School Aged : Resources for Families : Support and Resources : Coastal Alabama Down Syndrome Society

Healthcare Checklist for Children and Adolescents with Down Syndrome (AAP)
Learning Profile (NDSS)
Speech and Language Resources, Potty Training, Feeding Challenges (NDSC)
Obstructive Sleep Apnea in Children with Down Syndrome Update on a Pediatric Hypoglossal Nerve Stimulation Study (INCLUDE Project with Dr Hartnick)
Co-Occurring Down Syndrome and Autism Spectrum Disorder (NDSC)
Supporting Positive Behavior in Children and Teens with Down Syndrome (DSDN with Dr Stein)
Down Syndrome Regression Disorder (NDSS)
D.A.D.S. Appreciating Down Syndrome (D.A.D.S.)
Rockin’ Moms and Dads Retreats (DSDN)
Locate a Down Syndrome Parent Organization By State (NDSC)
2022 American Academy of Pediatrics Health Supervision for Children and Adolescents With Down Syndrome (AAP)
Healthcare Guidelines Record Sheet in English, courtesy of Anna and John J. Sie Center for Down Syndrome
International Down Syndrome Organizations & Clinics (GLOBAL)

Feeding Challenges

Metabolism can be 10-15% “slower” in individuals with Down syndrome compared to peers of the same height, weight, age, and gender, so it is important to be aware of their diets.

Individuals with Down syndrome can encounter challenges with it comes too:

Mineral Deficiency or Excess (i.e., calcium, iron)
Macronutrient Deficiency (i.e., fiber, water)
Excess (or Inadequate) Energy Intake for current activity/stress level
Co-occurring Gastrointestinal or Autoimmune Conditions
Feeding Difficulties

If you are struggling with any of these issues, you should consult a Registered Dietitian in your home state. Make sure to communicate your expectations and goals for a visit ahead of time to ensure your time can be used effectively and efficiently. Share a diet and drink log but also share medical records and the timing of when you give medications.

Mass General Children’s Hospital provides information on Healthy Eating Tips for Toddlers with Down Syndrome.

Broccoli Boot Camp is a comprehensive guide for parents of children who are selective or “picky” eaters and can be used with children with or without special needs (e.g, autism or Down syndrome). It presents commonsense behavioral interventions to successfully expand children’s diet variety and preferences for healthy foods.

Request an adaptive onesie from Annie Louis Foundation https://www.annielouisefoundation.org/

You may also apply for a grant to help with equipment